The following is a proclamation by Governor Cooper stating May 2024 is to be observed as Huntington's Disease Awareness Month. View the proclamation on the official state website.
Additional support can be channeled through HD Reach. HD Reach is a 501c3 nonprofit working to improve the care and quality of life of those affected by Huntington’s disease. Founded in 2009, they provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing. Find out more here.
HUNTINGTON’S DISEASE AWARENESS MONTH
2024
BY THE GOVERNOR OF THE STATE OF NORTH CAROLINA
A PROCLAMATION
WHEREAS, Huntington’s Disease is an inherited, progressively degenerative neurological disease that causes total physical and mental deterioration over a 10 – 20 year period; and
WHEREAS, approximately 1,000 North Carolinians suffer from Huntington's Disease, and 5,500 individuals have a 50 percent chance of inheriting the disease from an affected parent; and
WHEREAS, there is currently no treatment to stop or slow the progression of Huntington's Disease, and symptoms usually present in adults ages 35 – 55, disrupting their ability to work and provide for their family; and
WHEREAS, Huntington's Disease organizations in North Carolina and nationwide work tirelessly to provide support, resources, awareness and research to create a world free of this horrific disease; and
WHEREAS, the State of North Carolina encourages all residents to know the importance of medical institutions and research teams in their efforts to serve patients and families with this devastating disease and to unravel the mysteries of treatment and an eventual cure;
NOW, THEREFORE, I, ROY COOPER, Governor of the State of North Carolina, do hereby proclaim May, 2024, as “HUNTINGTON’S DISEASE AWARENESS MONTH” in North Carolina, and commend its observance to all citizens.
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Roy Cooper
Governor
IN WITNESS WHEREOF, I have hereunto set my hand and affixed the Great Seal of the State of North Carolina at the Capitol in Raleigh this thirtieth day of April in the year of our Lord two thousand and twenty-four and of the Independence of the United States of America the two hundred and forty-eighth.