Support Groups and Events

The Duke Movement Disorders Center is proud to participate in a variety of events to support and educate individuals with Parkinson's and their care partners, including regular support groups, introductory programs to provide basic information on Parkinson's, workshops for couples, and monthly singing and communications workshops. Click on the choices below to learn more about each of our upcoming programs.

 For more information on any of our groups or programs, or to RSVP for a zoom link, please contact Lacy Rardin Sledge, LCSW, (lacy.rardin@duke.edu) or Anne Kosem, LCSW (anne.kosem@duke.edu).

Parkinson's Support Groups
Patients diagnosed with Parkinson's disease, as well as their care partners, are welcome to attend the Durham Parkinson's Disease Support Group, held from 10:30 a.m. to noon on the fourth Tuesday of every month. This free support group, sponsored by the Parkinson Foundation, is open to all (you do not have to be a Duke patient to attend). Our Support Group is scheduled to meet on the following dates in 2022:

July 26th -Enhancing Resilience video by Bryan Sexton, PhD and Carrie Adair, PhD

August 23rd – Small Group Discussions

September 27th – Ask the Doc with Dr. Nicole Calakos

Duke Movement Disorders Division Chief

October 25th – Small Group Discussions

November 23rd – Mental Health and PD

DecemberNo Meeting

Download a flyer for the PD Support Group here.

Due to the ongoing pandemic, all support groups are now being held online. We hope that you can join us from your living room or other safe location. For more information, or to join, contact Allison Allen, LCSW, at 919-681-2656, or allison.m.allen@duke.edu.

Our Parkinson's Disease Support Groups are now being held virtually (please email Allison Allen to RSVP and for the Zoom link).

Young Onset Parkinson's Disease (YOPD): Triangle YOPD Connections

 People with YOPD and their carepartners are invited to participate in conversations and support focusing on parenting, careers, relationships and other topics unique to this community. The group will be held monthly on the 1st Wednesday of each month from 7-8:30 p.m. It will be virtual for now, with the hope to return to in person soon! For more information or to find out if this group is a good fit for you, please contact Allison Allen, LCSW (allison.m.allen@duke.edu) or Anne Kosem, LCSW (anne.kosem@duke.edu) or (919) 681-2656. Download a flyer for this program here.

The Loud Crowd (Speech and Communication Group for People with Parkinson's Disease)

A new speech and communication group for people with Parkinson’s disease hosted by Kaylea Nicholson, SLT and based out of the Duke Holly Springs Campus. Come enjoy camaraderie and support as we perform SPEAK OUT! exercises and practice speaking with intent. This group meets virtually on the 3rd Friday of each month. Contact Kaylea Nicholson for more information at kaylea.nicholson@duke.edu

Download a flyer for the event here.

Loud and Proud

Loud and Proud is a speech and communication group specifically for those with Parkinson’s Disease. You will learn effective speech exercises, practice communication skills and SING!

These meetings are now being held virtually on the 2nd Monday of the month from 2-3 p.m. Please join us from your living room or other safe location. For more information or instructions on how to join, contact Meredith Nye at Meredith.Nye@duke.edu.

The Loud and Proud Communication Group is scheduled to meet on the following dates:

  • August 8
  • September 12
  • October 10
  • November 14
  • December 12

Download a flyer for the Loud and Proud meetings here.

Other Events

In-person events have been postponed  to safety concerns about COVID-19. We hope to resume our community support groups for those impacted by Parkinson’s disease as safety allows.
Keep an eye out for an announcement on our annual Meet the Researcher event, which will be held at a future date.

The Huntington's Disease Society of America (HDSA) and Duke Health hold bimonthly support groups for individuals diagnosed with or at-risk for Huntington's Disease and their carepartners. You do not have to be a Duke patient to attend. Because of the ongoing COVID-19 epidemic, these meetings are being held online for the foreseeable future. Please join us from your living room or other safe location. For more information, email Lacy Rardin, LCSW, at Lacy.Rardin@duke.edu.

The group will meet from 10:30 a.m.-12:30 p.m. on the following Wednesdays, with a complimentary lunch at noon.

  • September 14
  • November 9

Download a flyer for the HD online support group here.

Meetings will be held at Duke Integrative Medicine on 3475 Erwin Road, Durham, 27705. For more information, contact Allison Allen, LCSW, at Allison.M.Allen@duke.edu or Anne Kosem at anne.kosem@duke.edu.

The North Carolina Dystonia Support Group will meet virtually from 1-2:30 p.m. on the second Thursday of the month. Join to learn more about dystonia and meet others in the community. Individuals with all forms of dystonia, as well as their family and friends, are welcome to attend. Attend via Zoom here. For more information or to RSVP, email Crystal Edmonds at Cedystonia1920@gmail.com. or Enrique Perez at Eap7719@gmail.com. You can also visit the Dystonia Medical Research Foundation.

The NC Dystonia Support Group has a Facebook page, which you can visit here.