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Support Groups and Events

Parkinson's and Movement Disorders

The Duke Movement Disorders Center is proud to participate in a variety of events to support and educate individuals with Parkinson's and their care partners, including regular support groups, introductory programs to provide basic information on Parkinson's, workshops for couples, and monthly singing and communications workshops.

Click on the choices below to learn more about each of our upcoming programs. For more information on any of our groups or programs, please contact Allison Allen, LCSW (allison.m.allen@duke.edu) or Anne Kosem, LCSW (anne.kosem@duke.edu) by email or phone (919-681-2656). 

Parkinson's Disease

Parkinson's Support Groups
Patients diagnosed with Parkinson's disease, as well as their care partners, are welcome to attend the Durham Parkinson's Disease Support Group, held from 10:30 a.m. to noon on the fourth Tuesday of every month. This free support group, sponsored by the Parkinson Foundation, is open to all (you do not have to be a Duke patient to attend).

Due to the COVID-19 outbreak, all support groups are now being held online. We hope that you can join us from your living room or other safe location. For more information, or to join, contact Allison Allen, LCSW, at 919-681-2656, or allison.m.allen@duke.edu.

Meetings are held in at the Duke Integrative Medicine Center (3475 Erwin Road, Durham NC, 27705).

 

Young Onset Parkinson's Disease (YOPD): Triangle YOPD Connections

This "meet up" is new in 2021! People with YOPD and their carepartners are invited to participate in conversations and support focusing on parenting, careers, relationships and other topics unique to this community. The group will begin on April 7th and continue monthly on the 1st Wednesday of each month from 7-8:30 p.m. It will be virtual for now, with the hope to return to in person soon! For more information or to find out if this group is a good fit for you, please contact Allison Allen, LCSW (allison.m.allen@duke.edu) or Anne Kosem, LCSW (anne.kosem@duke.edu) or (919) 681-2656. Meetings in 2021 are scheduled for November 3rd, and December 1st. Download a flyer for this program here.

The Loud Crowd (Speech and Communication Group for People with Parkinson's Disease)

A new speech and communication group for people with Parkinson’s disease hosted by Kaylea Nicholson, SLT and based out of the Duke Holly Springs Campus. Come enjoy camaraderie and support as we perform SPEAK OUT! exercises and practice speaking with intent. This group meets on the 4th Friday of each month. Contact Kaylea Nicholson for more information at kaylea.nicholson@duke.edu. Download a flyer for the event here.
 

 

Loud and Proud

A monthly speech and communication group for Parkinson's disease led by the Department of Speech Pathology and Audiology. Caregivers are welcome.Come learn effective speech strategies, practice communication skills, and SING!

Loud and Proud meetings are now being held online on Mondays from 2-3 p.m. Please join us from your living room or other safe location. For more information or instructions on how to join, contact Meredith Nye at Meredith.Nye@duke.edu.

 

Other Events

In-person events have been postponed  to safety concerns about COVID-19. We hope to resume our community support groups for those impacted by Parkinson’s disease as safety allows.
Keep an eye out for an announcement on our annual Meet the Researcher event, which will be held at a future date.
 

Huntington's Support Groups

The Huntington's Disease Society of America (HDSA) and Duke Health hold bimonthly support groups for individuals diagnosed with or at-risk for Huntington's Disease and their carepartners. The group will meet from 10:30-11:30 a.m. on the following Wednesdays: November 17, 2021 and January 12, 2022. Click here to download a flyer for this support group.

Because of the ongoing COVID-19 epidemic, these meetings are being held online for the foreseeable future. Please join us from your living room or other safe location. For more information, email Lacy Rardin, LCSW, at Lacy.Rardin@duke.edu.

Meetings will be held at Duke Integrative Medicine on 3475 Erwin Road, Durham, 27705. For more information, contact Allison Allen, LCSW, at Allison.M.Allen@duke.edu or Anne Kosem at anne.kosem@duke.edu.

Dystonia Support Groups

The North Carolina Dystonia Support Group will meet virtually from 1-2:30 p.m. on the second Thursday of the month. Join to learn more about dystonia and meet others in the community. Individuals with all forms of dystonia, as well as their family and friends, are welcome to attend. Attend via Zoom here. For more information or to RSVP, email Crystal Edmonds at Cedystonia1920@gmail.com. or Enrique Perez at Eap7719@gmail.com. You can also visit the Dystonia Medical Research Foundation.

The NC Dystonia Support Group has a Facebook page, which you can visit here.

Meetings in 2021 are scheduled for the following dates:

  • October 14
  • November 11
  • December 9